|Crying because Mom took the Hot Tamales away!|
Well, I had a blood draw a few days ago and I was still hanging at 4,600 white blood cells, 3,560 red cells and platelets at 188,000. I was glad, but a bit surprised as I had been feeling crummy for about a week. I suppose that I was anticipating that they had gone down. I have one more dance practice before the competition this weekend and I really want to feel good.
Fast forward three days:
Today I met with my doctor again. Surprise, surprise! My white cells have dipped to 2,600; reds and platelets are about the same. I just knew that I wasn’t feeling quite right! It’s funny how the drop in white cells affects me; I become more tired and just have an overall unwell feeling. I explain to the doctor that I am going to a dance event regardless; and that I plan on competing. She shakes her head and smiles and then says, “Well, we had better give you another shot of Neupogen (Filgrastim).” The last time that I had a Neupogen injection I felt quite a bit better within two days. Two days from now I will be on the competition floor. I am keeping my fingers crossed!
On the upside, I also met with my doctor’s assistant. She was actually able to give me a relatively convincing reason as to “why” my doctor wants to keep me on 100 mg of Sprycel vs 70 mg. She explained that 100 mg seems to be the dosage that not only reduces the Philadelphia chromosomes; it is also strong enough of a dose to prevent the chromosomes from figuring out a way around the drug. In other words, the bad cells are smart little suckers and they can often adapt to their environment and manage to reproduce despite the inhibitor. That is one of the risks of this oral treatment; the possibility of becoming resistant to it.
I guess that I now better understand that the goal is not only to reduce the white cells in my blood; but to eradicate the underlying reason that they are there as well; I can accept my prescribed dosage. The ultimate goal is to have no Philadelphia chromosomes in the bone marrow; thus resulting in a normal white cell count in my blood. Of course, my question to her was, “If my blood keeps dropping so low on the 100 mg dose, does this mean that it is also preventing me from producing healthy white cells, as well?” Her answer, “Good question, I guess that I will have to find out that answer and get back to you.”
So, once again I am a bit confused. I think that I will be seeking a third opinion shortly.crossed!