Friday, January 29, 2016
On occasion, I roll in and roll out of these appointments unscathed; everything status quo; other times there are hitches. The visit with my CML oncologist went pretty much as I anticipated; moderate pleural effusion in both lungs.
I say that I expected this because for the past six months I have been taking 140mg of Sprycel, six days a week, as opposed to five days a week, to try and get my PCR back to a ".0something" number. Three months ago it was .074, the best PCR I have had in eighteen months.
My body tolerates 140mg five days a week quite well, but every once in a while, I want better numbers and go for the gusto, upping my dose! This typically results in a great PCR, but also pleural effusion! Guess I can't have the whole ball of wax!
My next appointment was to the gynecological oncologist; this visit has been so routine for 10 years, that I never expect there to be a hitch; but this time: FOOLED YA!!
My CA125, a blood test that is used by gynecologist as a tumor indicator, was elevated. I guess up to 33 is "normal" and mine was 102. Not extremely elevated, but given my history, a CT scan was ordered "just to be safe". Grrrrrrrrrr....
As luck would have it, apparently I have 4-5 mm diameter spiculated nodule without calcification and a 3 mm diameter calcified nodule of the right middle lobe. What ever the heck that means! Hopefully NOT lung cancer!
Having to keep on top of CML is difficult enough, I cannot even imagine dealing with another serious illness!
I am trying not to lose too much sleep, and trying not to give in to the what ifs', but I have to say "what the @$#!? " has come out of my mouth more than one occasion!
I often wonder whether or not I am just plain dense, and therefore have many lessons still to be learned, many challenges to overcome, or if I am just an integral part of someone elses' learning process and journey. Either way, I certainly wish that I could catch a break!
Looks as if 2016 is starting off with a BANG!!
Blessings to all; please keep me in your thoughts and prayers if you have room, as I see many more tragic journey's than my own......