This sure wasn't in my plan, but it is my journey! To follow my story be sure to go to my first post as I am attempting to write this blog chronologically. Blog Archives are on the lower right hand side of the blog.
Thursday, June 14, 2018
Bosulif Update: The New Wonder Drug!
I had previously been on Sprycel since diagnosis, but the side effect, pleural effusion, became more than I or my lung could handle; hence the switch to Bosulif.
To further complicate matters, my PCR; the test used to measure the amount of disease in my body had climbed from .042. to .972, which doesn't seem like much, but in the world of a CML patient, it is "scary huge"!
I tried ginger....ginger ale, ginger slices and ginger oil! I tried peppermint oil and peppermint Altoids! All those seem toe help somewhat.
I began using CBD oil (no THC) 300 mg, and sucking on Preggie Pops, along with the Zofran; this seemed to help tremendously. That, coupled with the fact that my PCR dropped to .06, and I was beginning to be a happy camper, once again!
Fast forward seven months, and I am happy and proud to say, that my body is finally adjusting to Bosulif!!!
I have only taken two Zofran, during the past two weeks; the CBD oil and the Preggie Pops seem to be all I need at this point, and I am SO grateful! Very little nausea, and no diarrhea! I was a bit fearful to stop the Zofran, as I believed that it counter-acted the diarrhea aspect of the Bosulif, due to the fact that it can cause constipation, but it seems that the Zofran has helped me to adjust to the Bosulif and has become an "as needed" medication, instead of a "must have."
I am still splitting my 400 mg, per day dose; into two 200 mg doses, twice a day; this is working for me.
I am SO grateful; I am seriously almost giddy! And to top all of that off, my latest PCR test came back at .06!!! Once again below the .1%, coveted number! Thank you, Bosulif!
Some of us accept a change in medication more easily than others; I needed to be pushed off a cliff! Fortunately, there was a safety net, to catch me at the bottom.
Be Brave, Be Fierce and Be Grateful!
Blessings to all of you Warriors!
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#chronicillness #bebrave #chronicmylogenousleukemia #Bosulif #leukemia #lovemylife #cml
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