The past few months, this has not been the case. Starting with the complications from my rotator cuff surgery, due to chronic pleural effusions, and the switch to a new CML medication, Bosulif, to hopefully alleviate my pleural effusions.
I have found Bosulif to have few side effects thus far, with the exception of nausea and vomiting; this has been controlled by pre-medicating with Zofran/Ondansetron. I started this medication while in southern California, visiting family, and was able to fill the prescription of Zofran, with prior authorization, at Walgreen's, with no problem.
I am home now, in Boise, Idaho and it has become a problem. Three days and about six hours on the phone, worth of "problem", headache, frustration and aggravation, along with fear. It seems that Walgreen's is unable to run the prescription through my insurance, the same way that they did in California; why? I do not know!
They then transferred it to the mail order pharmacy, where I get my VERY expensive leukemia medications from, and they, too cannot "mail" it, and bill it through my insurance.
I have now called the local pharmacy, in the hospital, in high hopes of them being able to bill my insurance, for this medication. I have four more pills, and have been cutting them in half, to hopefully "survive" the next few days.
What I have noticed, since cutting them in half, is that for the first time since starting Bosulif, I now have the infamous diarrhea, to go along with the nausea. Yay!
So needless to say, I am pretty disgusted, and even a bit fearful; what happens if the Bosulif causes pleural effusion, too? UGH!
I guess every now and then, a good dose of reality, really does make you stop and think, that I really and truly, do still have cancer.
This coupled with a few recent CML deaths, and major complications remind me to get out there and enjoy my life!
We are headed to Arizona, to watch the four grands, while Mom and Dad go to Hawaii, on Friday; I plan to soak in, every single moment!