I suppose that the universe must have heard me marvel at how awesome everything was going, here in Wonderland, and decided that it was time to yank me back to reality! This yank began with what I thought was a throwback, to my old back antics. I reached for something and my hips shifted to the left, and my shoulders shifted to the right; this knocked me right out of commission; total bummer.
That episode lasted approximately ten days, but during that time, I realized that many other debilitating side effects decided to join the party. I currently have that all over achy feeling, muscle and joint pain, headaches and that terrible neuropathy in my CML Hands, which keeps me up, all night long; a harsh reminder that I still have cancer.
What I also realized was that I had started a new bottle of Sprycel. I grabbbed the old one and just as I had suspected, it was a different Lot number than the previous five bottles. I then went to the calendar where I record my Lot Numbers and side effects and marvel at the fact that I have not had one pain entry in five months!
I really ahd been living in Wonderland! I had found a golden supply of Sprycel; one that worked for me. Acceptable PCR and acceptable amount of side effects. Sad truth however, I knew that eventually the party would end; I just never realized how abruptly it could happen.
Just when you think you are in control, you are reminded that you are not. You are at the mercy of so many different aspects of the medical profession; oncologists, pharmacists, researchers and drug manufacturers. Because I have a chronic cancer of the blood, I either choose to treat the cancer, or not.
While this is not an easy thing to accept, it is my reality, and I must accept that.
On the up side; I started a new bottle of Sprycel, with a new Lot Number, last night. I am praying for these side effects to lessen, so that I am able to rejoin the living.
If the odds are in my favor, and it is a great bottle of Sprycel, you can bet that I will not waste a single moment, of my days in Wonderland!