I had my third visit with my new doctor and am still so glad that I made the change; seek and you shall find. My advice to anyone is that if you are not completely satisfied with your doctor, take the initiative and find one that you are comfortable and content with. Chronic myelogenous leukemia means just what it says; chronic. You will likely be spending the rest of your life visiting this person, so you might as well like them!
My current blood work is a bit on the low side with the whites at 3,700, reds at 3,800 and platelets at 166,000. The current plan of action is to do another bone marrow biopsy, this time under general anesthesia, in two months’ time. Depending upon the results, he and I are both hoping to be able to reduce my current dosage of 100 mg of Dasatinib (Sprycel ) to 70 mg. I am really anxious to see if the decrease will help to eliminate or at least lessen my current side effects. I would love to not always be so draggy and often sad. I would love it if my hair would quit falling out and these little bumps on my skin would go away. It would also be really nice if I could enjoy the summer without the heat making me sick. All small things in the big picture, but heck, why not hope for the best!
So, for now, everything is still status quo.
Good for you for finding a Dr. you like and trust! Good for the Dr. to realize that bone marrow - even with an epidural - is - just "icky" and without anything, as you know, borders on horrible! I am so glad this Dr. will do general anesthesia for you! Praying you can drop down to 70 too, and hoping so much that will lessen your side effects... Always praying for you my Belle!
ReplyDeleteLove - julia xo
Glad you will have anesthesia this time around! Josh goes in for his sedated BMA next week - but he's still nervous!
ReplyDeleteHe also has the crazy bumps/rash nonsense! I guess that's not specific to the med since you both have it!
Ugh! That sucks, I guess all of the drugs have some sort of side effects. Luckily I don't seem to have too many and they aren't too severe; knock on wood!
ReplyDeleteMe, too Julia since the next one is next month!
ReplyDelete