Tuesday, September 22, 2015

National CML Day

Today, September 22, (9/22) is a special day for those of us living with chronic mylogenous leukemia. It is a day to be grateful for the opportunity to fight our daily battle with CML, a day to reflect and mourn those who have lost their battle with CML, and a day to cheer on those that are facing the much larger battle with CML, through a bone marrow transplant.

For many of us diagnosed with CML, our life long battle consists of daily medication; this medication is designed to control, not cure CML.

CML is a blood cancer that occurs when a piece of chromosome 9 and chromosome 22, break apart, translocate and create a new chromosome indentified as the Philadelphia Chromosome. This chromosome acts like an on switch for white blood cells; normal range is between 4,000-10,000, when I was diagnosed, I had 385,000 white blood cells. While great strides have been made in managing this rare type of blood cancer, there is still no cure.

Since there is no rhyme nor reason, as to "if and when" CML will gain the upper hand and wreak havoc on its' host, I try to live each and every day to its' fullest, be grateful for the opportunity to still be alive and as a way to give back, I like to participate in the yearly fundraiser, Light the Night, sponsored by the Lymphoma Leukemia Society.

I hope and pray that some day there will be a cure for CML, and when this cure is found that the research leads to cures for many others cancers, as well.

Last year was the first year that we ever did any type of fundraising: we raised $2000! I was so grateful for the efforts of so many friends and family, and so humbled by your support. It is our goal to raise $2000 again this year.

Please donate if you are able; we are currently at 51% of our goal!

Living with CML is tough, but with your support and encouragement, I remain tougher!!

Thank you,

1 comment:

  1. People who works there are some of the sweetest people I've met. Save yourself some time and just go there. Everyone at venue New York is sweet and ask how you've been, even though normally staff keep their heads down.


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