Yesterday, Joe and I went to our local Leukemia Lymphoma Society office. We went to pick up my shirt for the Light the Night Walk. Last year our choices were; Supporter, In Memory and Survivor. I was a little disturbed by my choices at that time, because while yes I, and many others are "survivors", there are many of us that are still "fighting".
Living with a "chronic" cancer is a life long battle. Those of us with CML fight the good fight, every single day. Many of us will continue to fight that fight, for a very long time, while others with CML may face a progression in their disease, and either face a bone marrow transplant or death.
It is a cancer that is typically monitored every three months; sometimes you receive good news, and sometimes you don't. Point being, at this time, you are never "cured"; you live your life in treatment. You are not only a survivor, but a perpetual fighter, too.
(There are currently some trials, for those lucky few that reach an undetectable state for two plus years, to try to hold remission, drug free.)
We need a shirt for those who have yet to ring the bell; those who are still in treatment, those that are fighting for their life, in order to survive.
Because of the total awesomeness of our local Boise office and the gals that work there, we are the ONLY LLS office, nationwide that has Survivor/Fighter shirts, for our Light the Night Walk! I could scarcely believe my eyes when I saw that they had special shirts made up for those of us still in treatment....Could you believe it???? HOW AWESOME IS THAT!?!
Now, at the Light the Night Walk, all of us still in treatment will not be asked, " Ohhhh, how far out are you?" "Which cancer did you have?" or "When did you finish treatment?" Instead, it will be obvious that we are in the other club; the club that is still fighting the good fight. We are the ones that are still hoping and praying for a cure.
We are the ones that all of you are supporting; both monetarily and emotionally. We are Survivors AND Fighters and I thank our local office for recognizing us in this special way!!
Thank you Boise LLS; you guys ROCK!!
Please Donate if you can!! Every single penny helps!
Friday, September 25, 2015
Tuesday, September 22, 2015
For many of us diagnosed with CML, our life long battle consists of daily medication; this medication is designed to control, not cure CML.
Since there is no rhyme nor reason, as to "if and when" CML will gain the upper hand and wreak havoc on its' host, I try to live each and every day to its' fullest, be grateful for the opportunity to still be alive and as a way to give back, I like to participate in the yearly fundraiser, Light the Night, sponsored by the Lymphoma Leukemia Society.
I hope and pray that some day there will be a cure for CML, and when this cure is found that the research leads to cures for many others cancers, as well.
Last year was the first year that we ever did any type of fundraising: we raised $2000! I was so grateful for the efforts of so many friends and family, and so humbled by your support. It is our goal to raise $2000 again this year.
Please donate if you are able; we are currently at 51% of our goal!
Living with CML is tough, but with your support and encouragement, I remain tougher!!
Tuesday, September 1, 2015
|Light the Night!|
Living with CML has also led me down a path that has allowed me the opportunity to meet many others living with the same chronic cancer; this is a blessing and a curse. The blessing part of this opportunity is the friendships that I have made near and far; when you live with a chronic cancer, with no “visible” signs of illness, most people can never grasp what living with a chronic cancer is like; knowing others with the same disease allows us to relate to each other in a manner that no one else would understand. The curse part of this path is the blatant fact that people die; people that you have gotten to know and share a very raw bond with; die. It is a painstaking reality that none of us, ever get used to.
This leads me to my favorite path; the path of helping others; since September is National Blood Cancer Awareness Month, I have collected Lego's for ill children at St. Luke’s Hospital, in Boise, for the past three years. It is my way of giving back to the small warriors that are battling this, and other diseases. Brick's 4 the Brave: Put a Smile on a Child's Face!
join us on our walk and join our team. The walk is on Thursday, October 1, 2015, at Ann Morrison Park. I will hopefully have more details than this, soon.
So, if you are so inclined, please visit my Light the Night Walk Team Page and donate and join our team; Dancing My Way Through Leukemia! Joe and I will be walking for me and the many friends that I have lost this year, and all of my other friends' that are diligently fighting their own battles.
Lego’s can either be brought to a local dance, or mailed directly to me; Amazon is super easy, just be sure to add your name to the gift card, so that I can give you a great big thanks!
83 Falcon Dr
Boise, Idaho 83716
Boise, Idaho 83716