tag:blogger.com,1999:blog-7402247635006701650.post4241508836530499017..comments2023-06-30T00:57:26.573-07:00Comments on Leukemia Fighter! (CML); I Am Dancing and Traveling My Way Through: PCR Results, Thoracentesis and an MRIMichelehttp://www.blogger.com/profile/18185513255737012093noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7402247635006701650.post-61338159845388403212018-02-24T17:17:45.018-08:002018-02-24T17:17:45.018-08:00Hi Kat!!!
Thank you so much for being an "off...Hi Kat!!!<br />Thank you so much for being an "official follower"! I am BACK! and will be catching up on my journey, but a quick "peek" to you I have switched to Bosulif!Michelehttps://www.blogger.com/profile/18185513255737012093noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-55093032675726849092017-12-08T15:07:19.939-08:002017-12-08T15:07:19.939-08:00Hi, Michele, I'm a new (official) follower, al...Hi, Michele, I'm a new (official) follower, although I have benefited from your blog for quite some time. I have had CML since 2009, currently on Sprycel, had pleural effusions, fatigue, etc. - the whole CML "education"! I, too, am at the crossroads where you are: my onc wants me to switch to Bosutinib, as he is wary of reducing my dose to 20 mg. I had one PE at 70 mg, one at 50 mg. I've been off Sprycel for 12 weeks and next week is my showdown with the onc. I don't want to switch; I want to try 20 mg and see if I can regain my <0.01% IS status without triggering another pleural effusion. Anyway, I've been waiting and waiting to see how you are and what you are doing about this yourself, but every time I check, your last blog is Oct. 25th. I'm worried about you! Hope you see this.Kathttps://www.blogger.com/profile/11344636616546295258noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-74202940616327368542017-12-08T15:01:00.668-08:002017-12-08T15:01:00.668-08:00Hi, Michele, I'm a new official follower, alth...Hi, Michele, I'm a new official follower, although I've benefited from your blog for quite some time. We have some things in common - CML, Sprycel, pleural effusions, fatigue - a long journey of leukemia "education"! I'm writing now because I, too, am at a crossroads about switching to bosutinib, after two pleural effusions (one at 70 mg, one at 50 mg). Next week is my showdown with the onc, where I'm going to push for coming back from 12 weeks off Sprycel (PE gone) to 20 mg. He wants bosutinib instead, fearful that 20 mg is too low and can bring on drug resistance. Anyway, I've been waiting and waiting to see how you are and what you are doing about this in your own life, but every day I check this site and it still says Oct. 25th. I'm worried about you! I'm hoping you will see this here.<br />Kat Kathttps://www.blogger.com/profile/11344636616546295258noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-17582391790482123082017-10-26T20:02:38.495-07:002017-10-26T20:02:38.495-07:00Thank you Patti! I AM holding my own! We will be i...Thank you Patti! I AM holding my own! We will be in Az. in Dec., and March; San Tan Valley, how about you?<br />You guys take care and enjoy!<br />Love and hugs,<br />MicheleMichelehttps://www.blogger.com/profile/18185513255737012093noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-76970183418592961282017-10-26T19:30:01.141-07:002017-10-26T19:30:01.141-07:00I'm sorry to hear that you are having to go th...I'm sorry to hear that you are having to go through surgery tomorrow. You are in my prayers that everything will go really well. I'm not real versed on how things are going with your leukemia but from what you wrote, above about the .06%, I believe you are holding your own which is wonderful. Jim and I will be leaving this Sunday to go to Arizona for five month but I do hope that when we return we will be seeing you on the dance floor with Joe. I send my love, Patti pattihttps://www.blogger.com/profile/13547926919514736800noreply@blogger.com