tag:blogger.com,1999:blog-7402247635006701650.post3667809078671049644..comments2023-06-30T00:57:26.573-07:00Comments on Leukemia Fighter! (CML); I Am Dancing and Traveling My Way Through: Sprycel: The Little White Pill; Why Can’t I Remember?Michelehttp://www.blogger.com/profile/18185513255737012093noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-7402247635006701650.post-10631171803105586702018-08-27T12:49:38.064-07:002018-08-27T12:49:38.064-07:00Ow Michele, I had such fun reading your post 😂 Th...Ow Michele, I had such fun reading your post 😂 This is totally me!! My husband was so surprised I could not just take that one little pill “If it is that important to you, why can’t you just remember?” Well, I started with the alarm on my phone and a medicine app as well, would walk to the kitchen to take my pill and totally forgot what I was about to do and would find myself cleaning up the sink or dishes or whatever. If I did remember to go to my medicine cabinet I would turn off both the alarm and app, than look back at the Sprycel box not knowing if I had taken my pill or not... <br />So I also bought a pill box with the days of the week. And guess what, just like you I have to pay attention if I take some out of my secret stash 💊<br />Well, thankfully I just reached MMR after 6 months and we can laugh about this. Thank you for sharing!Michelehttps://www.blogger.com/profile/05284502416855580162noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-23775515703708401882012-10-19T11:32:13.715-07:002012-10-19T11:32:13.715-07:00Hi Christopher!
So glad that you stopped by; not s...Hi Christopher!<br />So glad that you stopped by; not so glad that you have leukemia! lol The brain fog is like the MOST annoying thing! I hate when I cannot think of a word, or words and when I cannot remember things. You don't know how many times I preface things with "I know that I have probably asked this questions before....BUT, I don't remember the answer!"<br />I am certain that I drive people crazy.<br /><br />Now, on the pill front; I know how imperative that it is to take my medication regularly and consistently. The pill box has helped me tremendously as does the alarm on my phone.<br />Please try this; it has worked for the chemo brain, leukemia patient!<br /><br />Best to you,<br />MicheleMichelehttps://www.blogger.com/profile/18185513255737012093noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-28088232602048660702012-10-15T23:11:11.134-07:002012-10-15T23:11:11.134-07:00Hi Michele! I can across your blog while searchin...Hi Michele! I can across your blog while searching for "chemo brain" on the Google. I have the EXACT same problem with my Sprycel too! Did I or didn't I? I think a few days (and probably in a row too) I double dosed myself thinking I had forgotten my pill before leaving for work and took ANOTHER one when arriving home. I tried the pill box but I forget where I put it, I tried writing it down but I forgot to look at the calendar, I wrote myself notes but wound up throwing them out thinking there were nothing important. It's frustrating and I feel like a child sometimes. It's gotten to the point where I tell my household "I'm taking my pill now! Don't forget so I don't accidentally take another pill later today!" I'm 28 and feel like an Alzheimer's patient sometimes rather than a leukemia patient...oh and thanks for the blog. I have something to read for the next few hours while I wait for the insomnia produced by the chemo to reach critical mass and I just pass out. You can check out my stupid blog on CML and everything else since I can't keep track of things mentally at csadlowski.weebly.com. : ) Anonymoushttps://www.blogger.com/profile/08938814440682745402noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-21377308236470882742011-07-21T10:38:40.807-07:002011-07-21T10:38:40.807-07:00Hi Roger,
Just curious; just how was "quite b...Hi Roger,<br />Just curious; just how was "quite by chance?"<br />Glad you found me and shared your story. I have a friend who was just dx with AML, as well....lol I'm a poet! Anyway, I am not sure that he is taking Sorafenib, I will have to ask him.<br />I am fortunate that Sprycel doesn't have and special instructions, other than no antacids within a few hours.<br />Keep up the good fight, Leukemia is leukemia, right?<br />MicheleMichelehttps://www.blogger.com/profile/18185513255737012093noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-16195351925037682932011-07-19T22:27:38.398-07:002011-07-19T22:27:38.398-07:00Michele,
I have leukemia, too, but AML. I happ...Michele,<br /> I have leukemia, too, but AML. I happened upon your blog quite by chance. Although not CML, I can relate to a lot of what you write about, most recently the taking of a super-important drug. I have been taking sorafenib (Nexavar) twice a day for nine months, and, as a result, I am in remission. Having been given little chance of surviving a year ago, I now feel great! So I make sure that I take my sorafenib. And it's difficult, because, for good absorption, it must be taken on an empty stomach -- nothing to eat two hours before or one hour after taking the sorafenib. So I need two 3-hour windows every day. Yee, Gads!<br /> I have used a pill box (actually 7 x 4 compartments) every day since I got home from the hospital. It works! I've messed up only three doses in nine months. I fill it once a week, of course, and put in the other drugs and supplements that I have to take, as well.<br /> I love your positive attitude! That is a large part of what enabled me to pull through a year ago.<br /> I am on www.CaringBridge.org/visit/rogerodellRogerhttps://www.blogger.com/profile/00532572679237985703noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-91017039722093573232011-06-24T08:00:16.689-07:002011-06-24T08:00:16.689-07:00Thanks Julia, Funny that you should talk about the...Thanks Julia, Funny that you should talk about the boxes and "old" people! HaHaHa...I always thought that, too, I just forgot!lol I am now one of those "old" people! lol And yes counting pills certainly doesn't work either cause I can't remember how many were in the bottle and then there was the fact that I didn't take any for ten days and one day I took one from my purse, so yeah, counting is definitely out! <br />And Laura, I guess I am lucky because Sprycel is only once a day with or without food....no restrictions! Score!Michelehttps://www.blogger.com/profile/18185513255737012093noreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-79220501131746095532011-06-23T21:34:33.038-07:002011-06-23T21:34:33.038-07:00It "may" be Chemo brain Michele, sounds ...It "may" be Chemo brain Michele, sounds more like a "stressed" person- with or without Chemo to me, I think the little, weekly pill box is a great idea for - anyone. Taking morning medication IS confusing, especially "did I take this already"? Then count to see (I am talking Synthroid) but I forget, obviously as much as I remember, so - doing a count doesn't help, at all. Since yours medication is a daily "must" those funky little pill boxes that I equate with "old people that can't remember didley squat" well, I'll admit I've been thinking making those aren't such a "dorky"thing anymore! (Geez, THAT must be an age thing too)... It's all ok, buy the box, it just makes you "human", and eventually that little box will get RID of your leukemia! Definitely a worth while investment! You can dance your way to the drug store to pick on up! All the best luck in Portland1 Love you always my Belle, Julia xoxoxoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7402247635006701650.post-71927623665355663542011-06-23T19:21:27.494-07:002011-06-23T19:21:27.494-07:00Josh has the same issues!! We do have a pill box ...Josh has the same issues!! We do have a pill box with the AM & PM boxes for each day. And he has his cell phone set to the alarm. Our problem are days where we eat late and then he has to take his pills a half hour later. So the alarm goes off, he turns it off, and then has to remember to take them in 30 minutes. Which can be hard to do! Go get a pill box for yourself!!! :)Anonymoushttps://www.blogger.com/profile/03842257796366624216noreply@blogger.com